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Article by Asad Rafi
Using the walker Being diagnosed of Friedrich’s Ataxia effectively ended my chances of going for higher studies abroad. I decided not to pursue with my studies anymore, as the disease was gradually making it more difficult for me to walk. After doing my A-levels at KGS I decided to give up my studies and concentrate on things that interested me. By this time I had stopped wearing a brace for my back and was now in the process of walking with a walker. The walker provided me assistance and prevented me from falling down in the beginning. With the passage of time it apparently got more tough for me to use the walker and I was beginning to fall down a lot Symptoms of Ataxia
I was again examined by the doctor to find out the reason for my falling frequently. I had been told that I had Friedrich’s Ataxia before and was told that my lower muscles were weakening and I got the shocking news that I would be transferred into a wheelchair. With that also came the news that I might not be able to walk again. Friedrich’s ataxia was a genetic disease and it caused progressive damage to the nervous system. It had a number of symptoms involved including loss of hearing, speech problem, etc. By the grace of God I have not had these symptoms effect me too much. There are slight traces of some of these symptoms which is natural but on the whole I have lived a problem free life. Things are very different these days compared to the old times. There has been so much progress in medicine and there is so much research going on in the field of ataxia, which makes me so optimistic about this disease being curable in the near future. Getting started at IBM
I would also like to talk about the time spent in IBM over 15 years which was definitely memorable and very enjoyable time. I had started by doing computer courses and went on to work for them. After completing my A-levels I had joined IBM as I was interested in computers. IBM being one of the most successful computer companies in modern times. As the then Managing Director of IBM was a good friend of my father, he offered me a job and I joined the finance department in IBM. I had been diagnosed of Friedrich’s Ataxia before joining IBM and I used to use a walker for walking. I remember taking rounds of the building using my walker and it felt great.
My transfer into a wheelchair happened while I was in IBM, due to my legs getting weak and making it impossible for me to walk. Let me say that the entire staff and employees of IBM were extremely caring and gave me all their support and courage. They made sure that my seat had a lot of space to maneuver and all my work was done on the computer. I did not need to do any running around for my work which made it very comfortable for me.
I made a lot of great friends a IBM. At one point and time we were five to six friends all working together in the finance department. It was one of the most enjoyable and memorable time I ever had. We used to joke, laugh, tease one another and also used to do our work at the same time. We were extremely lucky to have some extremely understanding managers who would also used to joke with us and engage in some interesting conversation with us today. The atmosphere used to be so entertaining and exciting.
A.F. FERGUSON
A.F. Ferguson which was an audit company and was headed by my father at that time used to do the audit of IBM. Their team compromised of some young boys who were extremely friendly with me. I remember when their team came over for the audit of IBM, we had a ball of a time, used to go for lunch and joke all the time. There were a couple of female auditors with whom I became friends and have kept in touch with them to this day. One of them is among my best friends and her name is Aana. She is married now and lives in England. I always try to meet her when I go to England. Very wheelchair friendly Washrooms For me the only apprehension in the new building was the washroom. I remember at Avari Plaza there being a single washroom which was at quite a distance from our department. So indeed it was quite a struggle for me to get to the washroom and there were not wheelchair friendly. What Zubair, my manager went on to do is what makes him so special and caring. While the building was being made he had my wheelchair taken to the new premises for measurements, so that the washroom being made could accommodate my wheelchair. When the building was ready and I went to check the washroom, I discovered that every floor had got washrooms. When I went to the 12th floor I found out that a separate washroom had been made for me and totally wheelchair friendly. There were rods fitted on each side to help me hold onto something while getting out of the wheelchair. Having a Positive Attitude in Life In the beginning this wheelchair felt like a prison for me because it confined me from where I wanted to go and prevented me from what I wanted to do. Like they say it is not the problems that determine your state it is your attitude towards it. If you can stay cheerful when confronted with a problem half the problem is automatically solved. It is also very imperative to have a positive attitude in life when faced with an obstacle in life like I was. Here I would say that being the only child of my parents definitely made life tougher for me in the beginning. The reason for that all the attention and focus being on me, which made me feel awkward and nervous at times. Of course there was the advantage of enjoying life to the fullest on my own and the immense freedom I had of being on my own was huge. It meant that being the only child gave me a lot of confidence as to how to live your life alone for the future. Photos: 1: Days at Karachi Grammar School 2: Days when working at IBM 3: Being Touristy in London 4: Giving a motivational Talk |
